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Griffith, G.M and Hastings, R and Nash, S and Petalas, M and Howling, P and Moss, J and Oliver, C and Petty, J and Tunnicliffe, P (2011) "You have to sit and explain it all, and explain yourself." Mothers experiences of caring for an adult with a rare genetic intellectual disability syndrome. Journal of Genetic Counseling, 20. pp. 167-177.